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The Big DeCODe survey: understanding the orphan device landscape.

As part of DeCODe’s mission, we are mapping and analysing the ecosystem of paediatric and orphan medical devices through surveys to identify stakeholders and tools, initiatives and supports for paediatric and orphan devices. Your contribution to the survey is much appreciated and should not take more than 2-3 minutes. You can access the survey via the following link:

Stakeholders, Tools, Initiatives and Supports to Orphan or Paediatric Medical Device Development

Surveys for patient representatives, ERNs and hospitals

In addition to the Big DeCODe survey we developed surveys for specific groups. If you are affiliated to one (or more) of these groups your contribution would be much appreciated and should not take more than 2-3 minutes. You can access the surveys via the following links:

Patient representatives: Survey for European Patient Representatives for Orphan and Paediatric Medical Devices

ERN: Survey for European Reference Networks on Orphan and Paediatric Medical Devices

Hospital: Survey for Hospitals participating in ERNs on experience with Orphan and Paediatric Devices

We value your privacy and consent: 

• If you provide personal data, you may request its retraction at any time. 

• Personal contact details will not be included in the DeCODe database but may be used to contact you in case further information is required to populate the database.