{"id":17,"date":"2024-11-13T14:26:40","date_gmt":"2024-11-13T14:26:40","guid":{"rendered":"https:\/\/decode-rd.com\/?page_id=17"},"modified":"2025-08-13T09:19:50","modified_gmt":"2025-08-13T09:19:50","slug":"news","status":"publish","type":"page","link":"https:\/\/decode-rd.com\/index.php\/news\/","title":{"rendered":"News"},"content":{"rendered":"\n<p>For the latest news, please see below <\/p>\n\n\n\n<p><strong>DeCODe expert support started<\/strong><\/p>\n\n\n\n<p>The DeCODe support for paediatric and orphan device developers successfully started by organising kick-off meetings with the successful applicants in the first weeks of July. Goal of the kick-off meeting was to get to know each other, and find the best suitable DeCODe support for the paediatric and orphan device developers. The follow up meetings are planned for the end of August.<\/p>\n\n\n\n<p class=\"has-text-align-left\"><strong>The Big DeCODe survey<\/strong>: understanding the orphan device landscape.<\/p>\n\n\n\n<p class=\"has-text-align-left\">As part of DeCODe&#8217;s mission, we are mapping and analysing the ecosystem of paediatric and orphan medical devices through surveys to identify stakeholders and tools, initiatives and supports for paediatric and orphan devices. Your contribution to the survey is much appreciated and should not take more than 2-3 minutes. You can access the survey via the following link:<\/p>\n\n\n\n<p><a href=\"https:\/\/utwentebs.eu.qualtrics.com\/jfe\/form\/SV_0xPJIjLnNfXepVA\">Stakeholders, Tools, Initiatives and Supports to Orphan or Paediatric Medical Device Development<\/a><\/p>\n\n\n\n<p><strong>Surveys for patient representatives, ERNs and hospitals<\/strong><\/p>\n\n\n\n<p>In addition to the Big DeCODe survey we developed surveys for specific groups. If you are affiliated to one (or more) of these groups your contribution would be much appreciated and should not take more than 2-3 minutes. You can access the surveys via the following links:<\/p>\n\n\n\n<p>Patient representatives: <a href=\"https:\/\/utwentebs.eu.qualtrics.com\/jfe\/form\/SV_23PtRZ3C65WF2ho\">Survey for European Patient Representatives for Orphan and Paediatric Medical Devices<\/a><\/p>\n\n\n\n<p>ERN: <a href=\"https:\/\/utwentebs.eu.qualtrics.com\/jfe\/form\/SV_1UewzM8BVFnmpnw\">Survey for European Reference Networks on Orphan and Paediatric Medical Devices<\/a><\/p>\n\n\n\n<p>Hospital: <a href=\"https:\/\/utwentebs.eu.qualtrics.com\/jfe\/form\/SV_25o2jSI5CuGp6ya\">Survey for Hospitals participating in ERNs on experience with Orphan and Paediatric Devices<\/a> <\/p>\n\n\n\n<p><\/p>\n\n\n\n<p><\/p>\n\n\n\n<p>We value your privacy and consent:&nbsp;<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>If you provide personal data, you may request its retraction at any time.&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Personal contact details will not be included in the DeCODe database but may be used to contact you in case further information is required to populate the database.&nbsp;<\/li>\n<\/ul>\n\n\n\n<div class=\"wp-block-media-text has-media-on-the-right is-stacked-on-mobile is-vertically-aligned-top\"><div class=\"wp-block-media-text__content\">\n<p class=\"has-text-align-left\"><strong>DeCODE kick off meeting<\/strong><\/p>\n\n\n\n<p class=\"has-text-align-left\">The DeCODe consortium successfully gathered for the kick-off meeting held in Brussels on 9-10 September 2024.<\/p>\n\n\n\n<ul class=\"wp-block-social-links is-layout-flex wp-block-social-links-is-layout-flex\"><li class=\"wp-social-link wp-social-link-linkedin  wp-block-social-link\"><a href=\"https:\/\/www.linkedin.com\/posts\/anneliene-jonker-4abbbba1_eu4health-ut-htsr-activity-7240373060250312704-IfQQ?utm_source=share&#038;utm_medium=member_desktop\" class=\"wp-block-social-link-anchor\"><svg width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" version=\"1.1\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" aria-hidden=\"true\" focusable=\"false\"><path d=\"M19.7,3H4.3C3.582,3,3,3.582,3,4.3v15.4C3,20.418,3.582,21,4.3,21h15.4c0.718,0,1.3-0.582,1.3-1.3V4.3 C21,3.582,20.418,3,19.7,3z M8.339,18.338H5.667v-8.59h2.672V18.338z M7.004,8.574c-0.857,0-1.549-0.694-1.549-1.548 c0-0.855,0.691-1.548,1.549-1.548c0.854,0,1.547,0.694,1.547,1.548C8.551,7.881,7.858,8.574,7.004,8.574z M18.339,18.338h-2.669 v-4.177c0-0.996-0.017-2.278-1.387-2.278c-1.389,0-1.601,1.086-1.601,2.206v4.249h-2.667v-8.59h2.559v1.174h0.037 c0.356-0.675,1.227-1.387,2.526-1.387c2.703,0,3.203,1.779,3.203,4.092V18.338z\"><\/path><\/svg><span class=\"wp-block-social-link-label screen-reader-text\">LinkedIn<\/span><\/a><\/li><\/ul>\n<\/div><figure class=\"wp-block-media-text__media\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"724\" src=\"https:\/\/decode-rd.com\/wp-content\/uploads\/2024\/11\/tempImagegtnyzz-1024x724.jpg\" alt=\"\" class=\"wp-image-135 size-full\" srcset=\"https:\/\/decode-rd.com\/wp-content\/uploads\/2024\/11\/tempImagegtnyzz-1024x724.jpg 1024w, https:\/\/decode-rd.com\/wp-content\/uploads\/2024\/11\/tempImagegtnyzz-300x212.jpg 300w, https:\/\/decode-rd.com\/wp-content\/uploads\/2024\/11\/tempImagegtnyzz-768x543.jpg 768w, https:\/\/decode-rd.com\/wp-content\/uploads\/2024\/11\/tempImagegtnyzz-1536x1085.jpg 1536w, https:\/\/decode-rd.com\/wp-content\/uploads\/2024\/11\/tempImagegtnyzz.jpg 1755w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure><\/div>\n\n\n\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>For the latest news, please see below DeCODe expert support started The DeCODe support for paediatric and orphan device developers successfully started by organising kick-off meetings with the successful applicants in the first weeks of July. Goal of the kick-off meeting was to get to know each other, and find [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-17","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/decode-rd.com\/index.php\/wp-json\/wp\/v2\/pages\/17","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/decode-rd.com\/index.php\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/decode-rd.com\/index.php\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/decode-rd.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/decode-rd.com\/index.php\/wp-json\/wp\/v2\/comments?post=17"}],"version-history":[{"count":9,"href":"https:\/\/decode-rd.com\/index.php\/wp-json\/wp\/v2\/pages\/17\/revisions"}],"predecessor-version":[{"id":228,"href":"https:\/\/decode-rd.com\/index.php\/wp-json\/wp\/v2\/pages\/17\/revisions\/228"}],"wp:attachment":[{"href":"https:\/\/decode-rd.com\/index.php\/wp-json\/wp\/v2\/media?parent=17"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}