{"id":241,"date":"2025-09-30T13:00:53","date_gmt":"2025-09-30T13:00:53","guid":{"rendered":"https:\/\/decode-rd.com\/?page_id=241"},"modified":"2025-10-08T09:05:52","modified_gmt":"2025-10-08T09:05:52","slug":"stakeholders","status":"publish","type":"page","link":"https:\/\/decode-rd.com\/index.php\/stakeholders\/","title":{"rendered":"Stakeholders"},"content":{"rendered":"\n<figure class=\"wp-block-table is-style-stripes\"><table class=\"has-fixed-layout\"><thead><tr><th>Name<\/th><th>Type of organisation<\/th><th>Link<\/th><\/tr><\/thead><tbody><tr><td>Belgian Pediatric Clinical Research Network<\/td><td>Clinical research network, access to CTUs, clinical experts and patients<\/td><td><a href=\"https:\/\/baop.be\/en\/task-forces\/scientific\/bpcrn\">https:\/\/baop.be\/en\/task-forces\/scientific\/bpcrn<\/a><\/td><\/tr><tr><td>Conect4Children (C4C)<\/td><td>Pediatric Clinical Research Networks<\/td><td><a href=\"https:\/\/conect4children.org\/\">https:\/\/conect4children.org\/<\/a><\/td><\/tr><tr><td>ERDERA<\/td><td>European Rare Diseases Research Alliance \u2013 a European partnership uniting over 170 public and private organisations across 37 countries<\/td><td><a href=\"https:\/\/erdera.org\/\">https:\/\/erdera.org\/<\/a><\/td><\/tr><tr><td>European Academy of Pediatric<\/td><td>Represents national paediatric societies across Europe, providing a forum for collaboration and knowledge exchange among specialists<\/td><td><a href=\"https:\/\/eapaediatrics.eu\/\">https:\/\/eapaediatrics.eu\/<\/a><\/td><\/tr><tr><td>Expamed<\/td><td>Central list for medical device expert panels<\/td><td><a href=\"https:\/\/health.ec.europa.eu\/latest-updates\/updated-central-list-medical-device-expert-panels-now-published-following-first-evaluation-2025-10-03_en\">https:\/\/health.ec.europa.eu\/latest-updates\/updated-central-list-medical-device-expert-panels-now-published-following-first-evaluation-2025-10-03_en<\/a><\/td><\/tr><tr><td>i4KIDS platform<\/td><td>Pediatric Innovation Hub which aims to generate a positive social impact&nbsp;and offer solutions adapted to the paediatric population<\/td><td><a href=\"https:\/\/www.innovation4kids.org\/en\/\">https:\/\/www.innovation4kids.org\/en\/<\/a><\/td><\/tr><tr><td>National Resource Centre for Oral Health in Rare Diagnoses<\/td><td>Resource for rare tooth health<\/td><td><a href=\"https:\/\/uniqueteeth.net\">https:\/\/uniqueteeth.net<\/a><\/td><\/tr><tr><td>OrphaDev4Kids<\/td><td>OrphaDev4Kids will grant access to a complex ecosystem including tools, facilities, and supportive services&nbsp;<\/td><td><a href=\"https:\/\/eptri.eu\/orpha-dev-4kids\/\">https:\/\/eptri.eu\/orpha-dev-4kids\/<\/a><\/td><\/tr><tr><td>PEDSTART<\/td><td>National paediatric clinical research network<\/td><td><a href=\"https:\/\/www.pedstart.org\/en\">https:\/\/www.pedstart.org\/en<\/a><\/td><\/tr><tr><td>Trial Nation<\/td><td>Specific Expert Support or mentoring<\/td><td><a href=\"https:\/\/trialnation.dk\/professional\/resources-2-2-4\/\">https:\/\/trialnation.dk\/professional\/resources-2-2-4\/<\/a><\/td><\/tr><tr><td>European Reference Networks (ERNs)<\/td><td>The European Reference Networks (ERNs) are cross-border networks that bring together European hospital centres of expertise and reference to tackle rare, low prevalence and complex diseases and conditions requiring highly specialised healthcare<\/td><td><a href=\"https:\/\/health.ec.europa.eu\/rare-diseases-and-european-reference-networks\/european-reference-networks_en\">https:\/\/health.ec.europa.eu\/rare-diseases-and-european-reference-networks\/european-reference-networks_en<\/a><\/td><\/tr><tr><td>EPTRI<\/td><td>EPTRI is a pan-European initiative involving hundreds of research units gathered together to boost the paediatric research ecosystem and provide services for the development of medicines for children<\/td><td><a href=\"https:\/\/eptri.eu\">https:\/\/eptri.eu<\/a><\/td><\/tr><\/tbody><\/table><\/figure>\n\n\n\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Name Type of organisation Link Belgian Pediatric Clinical Research Network Clinical research network, access to CTUs, clinical experts and patients https:\/\/baop.be\/en\/task-forces\/scientific\/bpcrn Conect4Children (C4C) Pediatric Clinical Research Networks https:\/\/conect4children.org\/ ERDERA European Rare Diseases Research Alliance \u2013 a European partnership uniting over 170 public and private organisations across 37 countries https:\/\/erdera.org\/ European [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-241","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/decode-rd.com\/index.php\/wp-json\/wp\/v2\/pages\/241","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/decode-rd.com\/index.php\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/decode-rd.com\/index.php\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/decode-rd.com\/index.php\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/decode-rd.com\/index.php\/wp-json\/wp\/v2\/comments?post=241"}],"version-history":[{"count":14,"href":"https:\/\/decode-rd.com\/index.php\/wp-json\/wp\/v2\/pages\/241\/revisions"}],"predecessor-version":[{"id":310,"href":"https:\/\/decode-rd.com\/index.php\/wp-json\/wp\/v2\/pages\/241\/revisions\/310"}],"wp:attachment":[{"href":"https:\/\/decode-rd.com\/index.php\/wp-json\/wp\/v2\/media?parent=241"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}